Involvement of people from black, Asian and minority ethnic communities in randomised trials is often poor. COVID-19 has highlighted just how important it is that trials involve those who are affected and have most to gain from research. Work in June 2020 found that of 1518 COVID-19 studies registered on ClinicalTrials.gov, only six were collecting data on ethnicity. Considering ethnicity is not routine in trials.
The webinar will discuss a collaborative project led by Trial Forge to develop a tool (called the INCLUDE Ethnicity Framework) that trial designers can use to make sure they think about factors that affect black, Asian and minority ethnic involvement in their trial. It is designed for all trials, not just COVID ones, and considers things like the disease itself, culture, the intervention being tested and trial information and procedures. We will talk about how the tool was developed, how to use it and what sort of information it provides when applied to some real trials.
The work is linked to the wider NIHR INCLUDE initiative; read more at https://doi.org/10.1186/s13063-020-04613-7.
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